Patient and Carer Experience Survey Mesothelioma

The  Mesothelioma UK Research Centre team , Sheffield University
has recently launched the mesothelioma patient and carer experience RPE survey.
 Eligible participants are:
People with a mesothelioma diagnosis, their families and close friends, bereaved family members and friends, professionals working to support treat or care for mesothelioma patients and carers. For example, health care professionals, asbestos support group professionals, lawyers, charity representatives and volunteers.

The purpose of the Research Prioritisation exercise is to identify unanswered questions about the mesothelioma patient and carer experience in the UK and to prioritise these areas, through consultation with patients,
carers and professionals.
This exercise is being undertaken by the Mesothelioma UK Research Centre team at the University of
We are inviting you to complete a survey and share this with anyone else you know who is eligible
and may be interested in taking part. We are seeking the views of people living with mesothelioma
and their family members or close friends (including bereaved carers) and also people working to
treat, care and support these people, including clinicians, academics, lawyers, asbestos support
group workers and charity representatives with professional or volunteer experience. 

This exercise is focused on the experiences of patients and carers in the UK only.
The survey will involve answering some brief questions about yourself. Following this, you will be
asked to watch eight short video recordings, each 1-2 minutes long, that present identified research
gaps. The survey will then ask how important you consider these research gaps and about any
additional topics or aspects of the patient and carer experience that you consider to be in need of
further research.
Further information about this research is provided at the start of the survey. Completing the survey
will take approximately 20-25 minutes.

Please complete the survey by Monday 31st May 2021. If you have any questions or concerns, please
do not hesitate to contact the
Many thanks for reading this and, if you complete the survey, for contributing to research to
improve the experiences of people living with a mesothelioma diagnosis.